Care Versus Accompaniment: Modern Dilemmas of Care in the Area of Intellectual and Developmental Disabilities (IDD)
Research line 3
Care Versus Accompaniment: Modern Dilemmas of Care in the Area of Intellectual and Developmental Disabilities (IDD)
It seeks to understand the positive aspects, tensions, and dilemmas faced by family members and other stakeholders as they accompany and support children, youth, and adults with IDD in their daily lives, with the aim of promoting the design of training programs that enable this group and their families to fully exercise their rights and participate effectively in society.
Objectives
- Understand the main needs and positive aspects perceived by caregivers and/or companions of people with IDD, considering personal and socio-cultural variables.
- Characterize, from the voice of those who accompany people with IDD, their attitudes towards the condition, towards people with IDD, and state agencies and current public policies.
- Design, test, and disseminate a training program that provides better support for people with IDD, incorporating a human rights perspective.
- Understand from the perspective of people with IDD, the care/companionship they receive from family, institutional, and community contexts, to make visible their experiences, needs, and contributions.
Head Researchers
Marcela Tenorio Delgado
PhD in Psychology from the Pontificia Universidad Católica de Chile. Lecturer/Researcher at Centro de Investigación para la Mejora de los Aprendizajes (CIMA), Faculty of Education, Universidad del Desarrollo.
Vanessa Vega Córdova
PhD in Research on Disability from the University of Salamanca, Spain. Inclusion director and professor at the School of Pedagogy of the Pontificia Universidad Católica de Valparaíso.
Paulina Arango Uribe
PhD in Psychology at Pontificia Universidad Católica de Chile. Professor at the Institute of Public Health at Universidad Andrés Bello.
- Research Line 3 studies
Current students
Felipe Espinoza
Doctoral student in Psychology at Pontificia Universidad Católica de Valparaíso. Her research focuses on ageing, care, communication and social participation of adults with intellectual disability in Chile.
Felipe Quintano
Psychologist and Master in Psychology. Doctoral student in Social Sciences at Universidad de La Frontera. His research focuses on the relationship between parenthood and separated families with children with intellectual disabilities.
Vannia Olivares
Bachelor’s in Education and in Spanish Language and Literature, with a Master in Cognitive Studies from the Pontifical Catholic University of Valparaíso. She is student of the Ph.D. in Linguistics at the PUCV.
Herbert Spencer
Graphic designer. PhD in Design student at Auckland University of Technology (AUT). His research focuses on developing a pictogram-based visual language system to support individuals with complex communication needs.
Natalia Alvarado
Psychologist and Master in Disability Research. PhD in Psychology student at Universidad de Salamanca. Her research focuses on inclusive research and its contribution during organizational change.