Caregiving versus companionship in the context of intellectual and developmental disabilities (IDD).

Research line 3

Caregiving versus companionship in the context of intellectual and developmental disabilities (IDD).

We understand both the positive aspects, the tensions and dilemmas faced by families and other stakeholders who accompany children, adolescents, and adults with IDD in their daily lives, seeking to promote the design of training programs that allow for the full exercise of rights and the effective participation in society of this group of people and their families.

Objectives

a. Comprehend the main needs and positive aspects perceived by caregivers and/or companions of people with IDD, considering personal and sociocultural variables.

b. Characterize, from the voice of those who accompany people with IDD: their attitudes towards the condition, towards people with IDD, and towards state agencies and current public policies.

c. Design, test and disseminate a training program that allows a better accompaniment to people with IDD, incorporating the human rights approach in this task.

Head Researchers

Marcela Tenorio Delgado
PhD in Psychology from the Pontificia Universidad Católica de Chile. Professor at the Universidad de los Andes (Chile).

Vanessa Vega Córdova
PhD in Research on Disability from the University of Salamanca, Spain. Adjunct professor at the School of Pedagogy of the Pontificia Universidad Católica de Valparaíso.

Paulina Arango Uribe
PhD in Psychology from the Pontificia Universidad Católica de Chile. Professor at the School of Psychology of the Universidad de los Andes (Chile) and director of the Master’s Degree in Pediatric Neuropsychology.

Adulthood, intellectual disability and independence.

Disability in the Chilean constitutional process

Tom Shakespeare, english expert on disability and bioethics, visited Chile with NúcleoDisca

Careful Interactions

Research Assistants

Maite González

Psychologist and Master in Social Psychology from Universidad Adolfo Ibáñez. Diploma student in Processing and Analysis of Social Data at Pontificia Universidad Católica de Chile. Professor at Universidad Adolfo Ibáñez.

Felipe Espinosa

Sociologist from University of Valparaíso and Master in Social Communication from Universidad de Chile. Master’s student in Statistics at Universidad de Valparaíso.

Students

Itzel Briano

Student of Nursery, Universidad Autónoma de San Luis Potosí, México.

Antonia Gautier

Psychology student at Universidad de los Andes. She is in charge of the MICARE PaSPID project registration.

María Ignacia Silva

Psychology student at Universidad de los Andes. She is in charge of the MICARE PaSPID project registration.

Eloísa Ortúzar

Psychology student at Universidad de los Andes. She is in charge of the MICARE PaSPID project registration.

María Isabel Ibarra

Psychology student at Universidad de los Andes. She is in charge of the MICARE PaSPID project registration.

Renata Garibaldi

Psychology student at Universidad de los Andes. She is in charge of the MICARE PaSPID project registration.

Magdalena Pinto

Psychology student at Universidad de los Andes. She is in charge of the MICARE PaSPID project registration.

Camila Salinas

Psychology student at Universidad de los Andes. She is in charge of the MICARE PaSPID project registration.

Alessandra Trapp

Psychology student at Universidad de los Andes.

Carlos Ortega

Psychology student at Universidad de los Andes.

Camila Hernández

Psychology student at Universidad de los Andes.

Simón Guajardo

Psychology student at Universidad de los Andes.

Natalia Núñez

Speech-language pathologist and Master’s student in Pediatric Neuropsychology at Universidad de los Andes. She specialized in the child-adolescent area in autism spectrum disorders and early care.

Constanza López

Journalist and PhD student of Interdisciplinary Studies on Thought, Culture and Society at Universidad de Valparaíso.

Félix González

Sociologist with an Master in Education. PhD student of Psychology at Pontificia Universidad Católica de Valparaíso.

Eduardo Marchant

Lawyer and PhD student of Constitutionalism and Law at Universidad Austral de Chile.

Catalina Pieper

Child and adolescent Clinical Psychologist. Master’s student in Pediatric Neuropsychology, Universidad de los Andes.

Katherine Exss

Graphic Designer, Master of Arts in Information Design from the University of Reading, UK. Professor at the School of Architecture and Design of the Pontificia Universidad Católica de Valparaíso. PhD student in Architecture and Urbanism at the Bío Bío University.

Ketty Cazorla

Social worker, Master of Health, doctoral student in Psychology at the Pontifical Catholic University of Valparaíso, and academic at the School of Social Work at the University of Valparaíso.