Care versus companionship in the context of intellectual and developmental disabilities (IDD).
Research line 3
Care versus companionship in the context of intellectual and developmental disabilities (IDD).
We understand both the positive aspects, the tensions and dilemmas faced by families and other stakeholders who accompany children, adolescents, and adults with IDD in their daily lives, seeking to promote the design of training programs that allow for the full exercise of rights and the effective participation in society of this group of people and their families.
Objectives
a. Comprehend the main needs and positive aspects perceived by carers and/or companions of people with IDD, considering personal and sociocultural variables.
b. Characterize, from the voice of those who accompany people with IDD: their attitudes towards the condition, towards people with IDD, and towards state agencies and current public policies.
c. Design, test and disseminate a training program that allows a better accompaniment to people with IDD, incorporating the human rights approach in this matter.
Head Researchers
Marcela Tenorio Delgado
PhD in Psychology from the Pontificia Universidad Católica de Chile. Professor at the Universidad de los Andes (Chile).
Vanessa Vega Córdova
PhD in Research on Disability from the University of Salamanca, Spain. Adjunct professor at the School of Pedagogy of the Pontificia Universidad Católica de Valparaíso.
Paulina Arango Uribe
PhD in Psychology at Pontificia Universidad Católica de Chile. Professor at the School of Psychology, Universidad de los Andes.
- Research Line 3 studies
Families of children with Down syndrome face misinformation and lack of empathy
Technology use among older adults with intellectual disabilities
Women with intellectual disabilities’ experiences of healthcare in Chile
TEAsy Life: An IA-based model to support the autonomy of adults with autism at home
Students
Félix González
Sociologist and Master in Education. Doctoral student in Psychology at Pontificia Universidad Católica de Valparaíso. His research focuses on intellectual disability and skills for independent living.
Katherine Exss
Graphic Designer, MA in Information Design. Doctoral student in Architecture and Urbanis at Pontificia Universidad Católica de Valparaíso. Her research focuses on thermal wellbeing of people with intellectual disabilities living independently.
Ketty Cazorla
Social worker and Master in Health. Doctoral student in Psychology at Pontificia Universidad Católica de Valparaíso.
Simón Guajardo
Psychology undergraduate student at Universidad de los Andes.
Alma Canaán
Psychologist, Master in Children and Adolescent Psychology and Master in speech and language pathologies. Master student in Pediatric Neuropsychology at Universidad de los Andes.
Sara Guerra
Psychologist. Master student in Public Studies at Universidad de Los Andes.
Ana Mendoza
Psychologist, Master in Cognitive Neuroscience and Neuropsychology and Master in Educational Advising. Doctoral student in Psychology at Universidad Autónoma de Madrid.
Ana Karen Fernández
Psychologist. Master student in Pediatric Neuropsychology at Universidad de los Andes. Her research focuses on early interactions between babies with Down syndrome and her parents.
Felipe Espinoza
Doctoral student in Psychology at Pontificia Universidad Católica de Valparaíso. Her research focuses on ageing, care, communication and social participation of adults with intellectual disability in Chile.
Alicia Fuentes
Psychologist. Doctoral student in Psychology at Universidad Alberto Hurtado. Her research focuses on children and adolescents with intellectual disability’s access to justice.
Malcolm Rivera
Engineering student at Pontificia Universidad Católica de Valparaíso. His research focuses on the design of housing universally accessible to people with disability.
Catalina Saavedra
Political science student at Universidad Diego Portales. Her research focuses on indigenous peoples’ vision of care and how it can be incorporated into public policy.
María Magdalena Muñoz
Speech and language pathologist and Master in Health Sciences Education. Doctoral student at Pontificia Universidad Católica de Chile. Her research focuses on language skills and school inclusion of students with Down syndrome.
Luis Donoso
Social worker and Master in social Work. Doctoral student in Psychology at Pontificia Universidad Católica de Valparaíso. His research focuses on social inclusion and autistic children.
Felipe Quintano
Psychologist and Master in Psychology. Doctoral student in Social Sciences at Universidad de La Frontera. His research focuses on the relationship between parenthood and separated families with children with intellectual disabilities.
Daniela González
Psychology student at Universidad de La Frontera.
Nicolás Zuñiga
Psychology student at Universidad de Los Andes.
Antonia Cabello
Political Science student at Universidad Diego Portales. Her research focuses on the participation of women in the Chilean judicial system.
Paulina Arriagada
Psychologist and Master in Social Inclusion and Disability. Doctoral student in Psychology at
Universidad Complutense de Madrid. Her research focuses on work inclusion of autistic persons.
Danitza Karin
Doctoral student in Law at Universidad Diego Portales. Her research focuses on autonomy of women in gender violence lawsuits.
Carlos Ortega
Psychology student at Universidad de los Andes.
Camila Hernández
Psychology student at Universidad de los Andes.
María Ignacia Rojas
Engineering student at Pontificia Universidad Católica de Valparaíso.
Former students
Lina González
Psychiatrist and Master in Clinical Epidemiology.
Jacinta Vélez
Sociologist, Master student in Applied Social Research Techniques at Universidad Autónoma de Barcelona.
Cristián Álvarez
Psychologist and Master in Clinical Psychology. Doctoral student in Psychology at Universidad de Chile.
Ignacio Verón
Psychologist and Master student in Relational Psychology at Universidad Alberto Hurtado.
Agustina de la Barra
Psychology student at Universidad de los Andes.
Constanza López
Journalist and Doctoral student in Interdisciplinary Studies on Thought, Culture and Society at Universidad de Valparaíso.
Eduardo Marchant
Lawyer and doctoral student in Law at Universidad Austral de Chile.
Paulina Gómez
Speech and language pathologist. Master student in Pediatric Neuropsychology at Universidad de los Andes.
