Caregiving versus companionship in the context of intellectual and developmental disabilities (IDD).

Research line 3

Caregiving versus companionship in the context of intellectual and developmental disabilities (IDD).

We understand both the positive aspects, the tensions and dilemmas faced by families and other stakeholders who accompany children, adolescents, and adults with IDD in their daily lives, seeking to promote the design of training programs that allow for the full exercise of rights and the effective participation in society of this group of people and their families.

Objectives

a. Comprehend the main needs and positive aspects perceived by caregivers and/or companions of people with IDD, considering personal and sociocultural variables.

b. Characterize, from the voice of those who accompany people with IDD: their attitudes towards the condition, towards people with IDD, and towards state agencies and current public policies.

c. Design, test and disseminate a training program that allows a better accompaniment to people with IDD, incorporating the human rights approach in this task.

Head Researchers

Marcela Tenorio Delgado
PhD in Psychology from the Pontificia Universidad Católica de Chile. Professor at the Universidad de los Andes (Chile).

Vanessa Vega Córdova
PhD in Research on Disability from the University of Salamanca, Spain. Adjunct professor at the School of Pedagogy of the Pontificia Universidad Católica de Valparaíso.

Paulina Arango Uribe
PhD in Psychology from the Pontificia Universidad Católica de Chile. Professor at the School of Psychology of the Universidad de los Andes (Chile) and director of the Master’s Degree in Pediatric Neuropsychology.

Research Assistants

Maite González

Psychologist and Master in Social Psychology from Universidad Adolfo Ibáñez. Diploma student in Processing and Analysis of Social Data at Pontificia Universidad Católica de Chile. Professor at Universidad Adolfo Ibáñez.

Felipe Espinosa

Sociologist from University of Valparaíso and Master in Social Communication from Universidad de Chile. Master’s student in Statistics at Universidad de Valparaíso.

Karen Fernández

Psychologist from Pontificia Universidad Católica de Chile. Programme Coordinator of the Master in Neuropsychology at Universidad de los Andes.

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