Care versus companionship in the context of intellectual and developmental disabilities (IDD).

Research line 3

Care versus companionship in the context of intellectual and developmental disabilities (IDD).

We understand both the positive aspects, the tensions and dilemmas faced by families and other stakeholders who accompany children, adolescents, and adults with IDD in their daily lives, seeking to promote the design of training programs that allow for the full exercise of rights and the effective participation in society of this group of people and their families.

Objectives

a. Comprehend the main needs and positive aspects perceived by carers and/or companions of people with IDD, considering personal and sociocultural variables.

b. Characterize, from the voice of those who accompany people with IDD: their attitudes towards the condition, towards people with IDD, and towards state agencies and current public policies.

c. Design, test and disseminate a training program that allows a better accompaniment to people with IDD, incorporating the human rights approach in this matter.

Head Researchers

Marcela Tenorio Delgado
PhD in Psychology from the Pontificia Universidad Católica de Chile. Professor at the Universidad de los Andes (Chile).

Vanessa Vega Córdova
PhD in Research on Disability from the University of Salamanca, Spain. Inclusion director and professor at the School of Pedagogy of the Pontificia Universidad Católica de Valparaíso.

Paulina Arango Uribe
PhD in Psychology at Pontificia Universidad Católica de Chile. Professor at the School of Psychology, Universidad de los Andes.

Current students

Félix González

Sociologist and Master in Education. Doctoral student in Psychology at Pontificia Universidad Católica de Valparaíso. His research focuses on intellectual disability and skills for independent living.

Felipe Espinoza

Doctoral student in Psychology at Pontificia Universidad Católica de Valparaíso. Her research focuses on ageing, care, communication and social participation of adults with intellectual disability in Chile.

Felipe Quintano

Psychologist and Master in Psychology. Doctoral student in Social Sciences at Universidad de La Frontera. His research focuses on the relationship between parenthood and separated families with children with intellectual disabilities.

Vannia Olivares

Bachelor’s in Education and in Spanish Language and Literature, with a Master in Cognitive Studies from the Pontifical Catholic University of Valparaíso. She is student of the Ph.D. in Linguistics at the PUCV.

Danitza Pérez

Doctoral student in Law at Universidad Diego Portales. Her research focuses on autonomy of women in gender violence lawsuits.

Herbert Spencer 

Graphic designer. PhD in Design student at Auckland University of Technology (AUT). His research focuses on developing a pictogram-based visual language system to support individuals with complex communication needs.

Natalia Alvarado 

Psychologist and Master in Disability Research. PhD in Psychology student at Universidad de Salamanca. Her research focuses on inclusive research and its contribution during organizational change.